SMARD - spinal muscular atrophy with respiratory distress

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Thank you to those who have made generous gifts to advance SMARD research.
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Dakin Lovelace

Meet Dakin Lovelace who is soon to be age four. Happy birthday, Dakin!

Dakin’s mom, Devon, is dedicated to raising funds for SMARD research. She has requested that in lieu of birthday gifts, donations be made to The Jackson Laboratory to support SMARD.

At birth Dakin appeared completely healthy. But around three months of age, he was suddenly no longer able to breathe. He was finally diagnosed with a rare neuromuscular disease called spinal muscular atrophy with respiratory distress (SMARD). SMARD robs children of the ability to walk or even breathe on their own. And until very recently, Dakin and his family had little hope for any kind of treatment or cure.

Recently, Dakin’s family learned of the work of Associate Professor Greg Cox, Ph.D., at The Jackson Laboratory. He, along with his research team, is one of the few genetic scientists in the world committed to better understanding this devastating disorder.

Learning about this research has brought hope to the Lovelaces and other families in the SMARD community. They now are doing everything they can to help make SMARD a priority at The Jackson Laboratory by raising funds to advance the research—work that could possibly help Dakin and his peers.

In September, friends and supporters gathered at White Oak High School stadium in White Oak, Texas, to stroll around the track and enjoy the ability to walk. The event raised more than $5,000 for SMARD research, yet Devon would like to raise more. 

Please join us in working toward a cure for Dakin! All proceeds will benefit SMARD research. Please donate online.

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